Dear NFED Family and Friends,
I would like to personally welcome you to the 13th Annual Halloween Bash. Keith and I, along with Bruce and Alice, and our team of 50+ committee members, would like to say THANK YOU for your continued support and let you know we truly appreciate you taking the time to visit this new site.
As many of you know, Keith and I started the Bash as a way to give back to the NFED after our son Ryan was born with severe skin erosion due to a rare form of ectodermal dysplasia. Today, he is an active, happy 14-year-old who attends public school and enjoys playing with his two brothers. The Halloween Bash was created as a way to raise awareness, develop better treatments, fund research and help all families affected by Ectodermal Dysplasias and today that same mission lives on.
This event, while completely virtual, still allows you the same opportunity to make a significant difference in a child’s life. By making a donation to the NFED, taking part in the on-line auction, by simply purchasing an ad in the on-line journal you will assist an individual affected by ectodermal dysplasia.
To date, the Halloween Bash has raised more than $3 million dollars and we hope to continue our success by allowing people around the world the opportunity to participate in this event. The funds raised at the Halloween Bash have enabled the NFED to host medical conferences, fund research, and provide patient support. This research has led to the identification of genetic markers of this disease in the hope of finding potential treatments and cures.
Our mission is to continue all of these life-enhancing activities for the NFED. The NFED is a 501(c)(3) organization (EIN #: 37-1112496). For more information about NFED, please contact our national office at (618) 566-2020 or visit www.nfed.org. Please join us in supporting the 13th Annual Halloween Bash.
With sincere appreciation,